Jesy Nelson is making an extra documentary on top of her new TV series - all about her campaign for newborns to be tested for Spinal Muscular Atrophy at birth. The former Little Mix star and mum-of-two finished officially filming her Prime Video series some time ago about her career and becoming a mum.

But she decided to allow the cameras to keep rolling after her twin daughters Ocean Jade and Story Monroe Nelson-Foster were diagnosed with SMA Type 1, a rare condition which causes muscle wastage. Jesy is calling for UK babies to be checked for SMA at birth via a heel prick test and The Mirror has joined her on this campaign, which will now be boosted by a Prime video programme, going out late in the year following the twins journey and Jesy’s call for action.

At the launch of her series Life After Little Mix which is released on February 13, Jesy discussed the new extra show and her hopes for change. She explained: "I just hope people continue to watch the next part of the journey. When the girls got their diagnosis, we decided that we wanted to continue filming. As hard as it was, we were like, ‘You know what? There's a reason you guys are here, and we've got to make the best out of this situation’.

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“I'm sure you guys are aware, like, I'm trying to get it[SMA] made part of the heel prick test. That's like my main goal right now, as well as looking after my beautiful girls.

“I mean, I haven't even seen it back yet, but I already know it's gonna be tough. But I'm just so happy that we've been able to document everything, because I really believe that we're going to make change. Like, I feel it.

“I love how dedicated people are to spreading awareness about everything that I've been through and this(new programme) is going to shed even more.”

Last month Jesy appeared on This Morning last month and vowed to “shout from the rooftops” to campaign for change. She wants SMA to be part of an NHS blood test that is normally carried out at five days old, and currently tests for 10 other conditions.

At her London screening today Jesy also gave a brief update on the health of the twins, who she has previously said may never walk due to SMA. She said: “They're so good. They're like, the best, you know, they're doing the best that they can, and they're happy and they're smiling, and that's, all I can ask for. I just can't wait to show it to them(TV series) when they're older and just be like ‘Look what you did, look how amazing you are’.”

The brave twins have already survived against the odds. They developed twin-to-twin transfusion syndrome in the womb which could have been fatal and doctors tell Jesy in the Prime Video Series there is “90-95%” chance both of the babies won’t survive if they don’t take urgent action.

Poignantly during complications whilst pregnant she tells the cameras: “I can't imagine not having these babies.

“It just progressively keeps getting worse, I can’t, I’m getting upset. Literally my brain can’t compute not having these babies because they’re my children now, and I felt them kick. They’re properly formed little humans."

* The series Jesy Nelson: Life After Little Mix is available on Prime Video from February 13. It will be followed by a one-off special later in the year. For further information on Spinal Muscular Atrophy please visit: https://smauk.org.uk/